Hiya Moriah is Finally Here!
6 years ago
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Hugo was born with CHARGE syndrome. Read here about his day to day life, the challenges he faces and how his determination and strong willed character leaves a hold on those who meet him and makes us two very lucky and proud parents.
All About Hugo
- Hugo
- Hugo was born in January 2009 with CHARGE syndrome. His medical conditions are: #Tetralogy of Fallot with Pulmonary atresia - surgically repaired on 6/4/09 #Severely visually impaired - bilateral colombomas and left microphthalmia (left side of his face smaller than right) #Hearing impaired #Brain stem hyperplasia - Dandy-walker variant #Single Right Kidney #Bulbar palsy #Right sided facial palsy #Left sided vocal cord palsy #Gastrostomy fed #Unsafe swallow, requiring regular suctioning - queried aspiration risk #Tongue tie #Developmental delay #Gastro-oesophageal reflux #Hyperparathyroidism #Genital abnormalities
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